Monday, September 19, 2011

Schedules and more!

I've been neglecting thoughtful blog posts lately, mostly because I have hardly had the time to breathe, what with boys, lunches, therapies, cleaning, trips, getting sick, knitting, and sleep. (Don't knock those last two, they make all the others possible I tell you). Today I'm writing for real, juggling two topics, and hoping I manage to get to everything in a moderately coherent few paragraphs.

Topic #1: The Second Child Syndrome
I realize that every second child gets a little less attention that their older counterpart, just by virtue of the math involved. Twenty-four hours in a day can only be divided so many times, and every child has to take a bit, so siblings get just a bit less than than eldest did when s/he was solo. In our house, Toby gets probably a little less attention than most second kids, since Henry requires a lot of time and energy. Aspergers is a tough nut, especially before age five, so while mommy and papa work very hard on making sure Henry keeps it together, Toby gets to fight for attention.

This fight he's learning might be a good thing, except that he is really working for the attention hard, all the time, and it's affecting him at school. Today he went back to try to do naptime again, since he has been doing really well with lying still for naptime at home. We are fully bribing with Oreos, but I need the kid to nap, and I really really need him to nap at school because otherwise my schedule becomes this completely unruly beast that might well be the end of me.

With Henry, we had to focus on ten million things all at once, and were working on getting him to learn about talking and having a conversation, and also trying to teach him self-control. His melt-downs were just not the same beast as Toby's very typical two-year-old tantrums, and Henry was simply not the little demand-machine that Toby is most of the time. We are novice parents again, but novice parents who are stretched absurdly thin trying to manage getting a four year old with Aspergers ready for life. Toby's missing out a bit, and I'm not sure how we fix that. We need to. He needs us to fix it, because he needs to learn things from us. And we need to be teaching him and feeling good about that, rather than feeling guilty, exhausted, and frustrated - especially when he gets sent home from school for disrupting naptime. (Fingers crossed, today is his magic turn around day. We need your vibes!)

And all that brings me to... Topic #2: The Schedule Dilemma

Striving for a simple schedule is a fundamental element of the parenting philosophy that I want desperately to embrace. After seeing Kim John Payne talk, listening to his CDs, reading his books, I feel him. I do. I'm having a rough-as-hell time integrating simplicity into our home life, in large part because I have this conflicted feeling about scheduling.

Everyone says that kids with autism and Aspergers need to get as much intervention as possible before age five - that this window is crucial to their development, their chances for success now and in the future - this is the make-it-or-break-it period. So we are getting Henry as much therapy as we can. We are also encouraging peer interactions by having him in his Waldorf school five days a week, which gives him space for free play with peers, a rhythm for the day and week, a community for friends, and space for mama to get some things done when she can focus on them fully. Henry's schedule is nuts, though.

Here, you be the judge - sample week:
Monday: Speech therapy 8:30-9, Hyperbaric 9:15-10:15, School 10:30-1:45, ABA therapy 2-5, Social Skills Group 5-6. Dinner, bath, bed at 7:30.
Tuesday: OT 9-10, School 10:15-3
Wednesday: OT 9-10, School 10:15-2:45, ABA 3-5
Thursday: Speech 8:30-9, Hyperbaric 9:15-10:15, School 10:30-3:00
Friday: School 8:30-1:45, ABA 2-5
Saturday: Speech Language Pathologist student meeting, Therapy Center Kids Fun night
Sunday: School Michaelmas Celebration

I'd love it if we could have a simple schedule, but I'm genuinely not sure how to make that happen without sacrificing some of the therapeutic opportunities for Henry. Oh, and this schedule ignores the fact that he and his brother get sick, his brother has to see the eye specialist about every month or so, and we inevitably have to rearrange things to accommodate things like the school district evaluation he has tomorrow (all day? I have no idea) because they want to judge for themselves, not trust all of his therapists about how he is doing.

Also playing into this dilemma - Toby and the naptime... I drop Toby at school at 8:40, and if he doesn't stay for naptime, I have to pick him up at 11:45, before lunch. Then I have to feed him and figure out how to make a nap work, and ALSO figure out how to manage driving Henry around in the afternoon when Toby is sleeping. You see, kid needs to nap at school, so I can pick him up at 2:40, making every day but Wednesday completely manageable. For me.

I have knitting in Mondays most weeks, and Bret has work many Wednesday nights. We juggle all of this but it's getting a bit absurd. Oh, and trying to potty train kids with this schedule - honestly, just thinking about it is making me want to stab a fork in my eye. Especially because Toby wants attention, so he'll tell you he has to go potty, ALL THE TIME. But still pee his pants. It's rad.

If I was trying to work right now, I would completely lose it. I know that millions of parents do juggle all this crap, four other kids, and also two full time jobs, and MY GOD THEY ARE AWESOME. They are not me.

So, superhumans, or regular humans with brains that can figure out these things: thoughts on getting Toby in line? Thoughts on getting our schedule into a more manageable state? Thoughts on finding joy in this chaos? I'll take it all.

Now, looking back over this, I'm feeling like this is more of a rant than a post that is meaningful and helpful in any way, and I feel badly about that. I'm not going to change it, however, because I really don't have any answers here. I'm feeling my way through blind, so a little complaining is about what I've got. For now. I do see things getting better. I have a feeling I'm getting better at managing things, even though it seems like I am not better at it most days. It's the rare occasion that someone asks me a question, and I have an answer, or Henry initiates a peer interaction that is totally normal, or Toby and Henry get wrapped up in giggles chatting across the dinner table that I think, wow, this is OK. And because I have those moments, I do know it's all OK, even when I moan about it.

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Totally unrelated to my ramblings, my sister-in-law has a lovely blog, and a lovely giveaway running until Wednesday, and since she is lovely you should visit The Lovely Owl today. And every day.